Thursday, August 1, 2013

Welcome!  This website is dedicated to all things Abigail, our soon to be 5 year old daughter with OCULO-AURICULO-VERTEBRAL SPECTRUM Disorder Spectrum Disorder also known as Goldenhar Syndrome.  Her medical history is extensive and constantly keeps us on our toes.

Abby is about to undergo 4 surgeries in the next few months and we've started some fundraiser efforts to help our family with the medical costs that insurance doesn't pay for.  Such as gas, hotel, food, lost wages etc associated with making long trips to the children's hospital and overnight stays.

So far the support for our little girl has been amazing.  We've raised several thousand dollars in just a few days and we've made some incredible partners who will be helping us along the way with big events to raise money.

Check back soon for her full story and follow along as her journey unfolds!